Prostate Cancer Support Group - Richmond, Va Meeting Dates - 3rd Thurs. each month - Time 7:00 PM - No July Meeting - The Dec. date will vary - Call for details - Peter C. Moon Phd. at 804-387-2151 between 7 - 11:00 PM - Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229 Rva Prostate Cancer Support Group www.rvaprostatecancersupport.org For details Contact - Peter C. Moon Phd. at 804-387-2151 between 7 - 11:00 PM Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229 Meetings are in the fellowship hall Bldg - at the back of the parking lot. In good faith, this website was created to furnish you with helpful information. Nevertheless, no one who contributes or posts information to this website makes any guarantee regarding the information provided. Any decisions that you make regarding your health should be made in consultation with a qualified healthcare provider. Affiliated with Us-TOO International Prostate Cancer Education & Support Network

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Nov 14th Meeting - 7 PM

(Meeting Thursday Nov 14 th at 7 PM at Ridge Baptist church fellowship hall) )

Meetings - Time Change - Back To The Old Time for Good

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If you have a topic or treatment you can explore for the group - let me know so I can set up a meeting for you to run.

RVA Prostate Cancer Support Group - Va Us Too Meeting at 7 PM Thursday Nov 14 At Ridge Baptist.

RVA US TOO/ZERO CANCER MEETING NOV 14TH 7PM WILL DISCUSS ISSUES RELATED PCa TREATMENT & DIET AND HEART ISSUES.

I HOPE YOU WILL COME AND SHARE YOUR EXPERIENCE AND KNOWLEDGE as heart disease is the number one cause of death and Lupron ADT doubles its occurrence. My heart doctors have wanted me to get a Pacemaker for about 8 years because with a holter monitor on my heart for 24 hours my heart stopped for 4 seconds and I had afib. This summer with the monitor on for two weeks my heart stopped for 7 seconds but I do not seem to have afib but I have something called PVC which is an occasional prefiring of the heart which may or may not be a problem??? But they still want to give me a monitor with no symptoms so I am going to have an echocardiogram at VCU in January to measure my ejection fraction of Blood from my heart which if I was younger they say should be between 50 to 70 %. If mine is 40% at my age I will not get a monitor with no symptoms.

My older brother (86) had a low heart ejection fraction of 14 % until he had a valve. replaced at UVa and a pacemaker..placed. He.would get out of breath talking on the phone in a few minutes so I would hang up. Now after the treatment (two months) he has an ejection fraction of 36% and is better. In addition, I found on google that high phosphate in the diet is bad for this heart issue and many of the things we take for muscles growth and fighting PCa are high in phosphate like most meats(but not fish), beans, nuts, all dairy, cheeses and lentils etc (you need to check your diet so you not over do things good for fighting PCa but bad for the heart). It turns out that magnesium at 400 mg/day (normal diet) to 700 mg per day(if high phosphate diet) supplements may be needed to eliminate Phosphates. Also 80 mg/day of zinc in supplements helps the heart phosphate load and reduces copper that increases blood veins feeding PCa mets and helps reduce phosphate injury to the heart.

I hope you can add your experience of heart issues at the meeting.

Hope to see you there.

Best
Peter
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(Warriors, Please be able to share your experience with the following Heart concerns==>

1. Heart valve leakage and its correction
2. Afib- Heartbeat arrhythmias + causes and treatment
3. Heart Ejection Fraction (desirable = 50 to70%)- symptoms and treatments
4. Heart carotid artery blockage/hardening of arteries - effects and treatments
5. Effect of PCa treatments especially androgen therapy
Best Peter)

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"You are encouraged to wear a mask if you can or at least sat apart
so as to limit Virus spread that may or may not exist. - Thanks Peter"

Please bring your ideas - All are welcome.
Meeting Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229

Meetings are held in the fellowship hall Bldg - at the back of the parking lot
For more details Contact - Peter C. Moon Phd. at 804-387-2151 between 7 - 11:00 PM
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Us Too/Zero Cancer Has Many Resources To Help You Negotiate Your Cancer.

Check Out The Link Below To See How To Access Them. Click on the Link below to For More Information.

Link: Us Too/Zero Cancer

http://support.zerocancer.org/site/MessageViewer?em_id=44133.0&dlv_id=59349
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Virtual Prostate Cancer Patient Festival-The National Prostate Cancer Conference Online
with presentations.

Various Dates and Times

Prostate Cancer Patient Conferences - A Festival Of Zoom Prostate Cancer Care - Some Free

Click on the Link below to For More Information.

Link: Festival

https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459

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Us Too Warriors,

Please see that Foundation 1 Liquid blood test for Somatic mutations has been FDA approved for medicare for about 300+ mutations and can be used more than once if the cancer progresses. Foundation One will be doing a virtual presentation for our Sept 17 RVA Us Too meeting. I will be sending more information about how to sign on line when they send it to me.

Click on the Link below for the Foundation 1 Liquid Blood Test.

Link: Blood Test

https://ancan.org/much-excellent-news-from-foundation-medicine/

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Click on the Link below for the Latest Prostatepedia.

Link: Prostatepedia

http://rvaprostatecancersupport.org/PDF/08 21 20 Prostatepedia_V6_1_PRINTABLE.pdf

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Fishing recovery trip for men dealing with cancer by a great group of FLY fishermen - ALL $$ cost covered

Spring is here and so are we! Reel Recovery is thrilled to announce the launch of our 2023 Retreat Season!

RVA Warriors, This is a great time, good camaraderie and discussions to help with recovery -All fishing gear, accommodations and food provided over several days. in Syria , Va. I went with my two brothers with cancer in 2017 and highly recommend it. They only take about 14 men, twice a year so sign up soon if you can.

Best Peter

REEL RECOVERY is a national non-profit organization that conducts free fly-fishing retreats for men recovering from cancer. Go to the link below for the details & application Information.

Location - Graves Mountain Lodge & Rose River Farm in Syria, VA

For more information, contact Reel Recovery at:
info@reelrecovery.org or call 800-699-4490
Website - http://reelrecovery.org/

Click on Our Link to get the Website
Project Healing
Reel Recovery
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Us Too Warriors,

This test is for men with advanced cancer with a rising PSA or CRPC or metastasis. These conditions should make it approvable by insurance if you have a tissue biopsy. If no biopsy, you will have to see what you can negotiate a for blood liquid biopsy test cost with the company. However, the liquid test is being submitted for FDA approval which may come through this year?? So Before you read all the details see if applies to your cancer situation

Websites follow for you to GOOGLE - see the link below

To see More - Click on the Link:

Link: Metastasis
or Go To
http://rvaprostatecancersupport.org/PDF/03 19 20 advanced cancer with rising PSA or CRPC.pdf

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Flu Like Symptoms

RVA - Us Too Warriors:

If you have not gotten a flu shot this winter

If you have not gotten a flu shot this winter, please do before coming to our next meeting on March 19, 2020. The flu is still strong in Va. and most of the people in Virginia checked for Cov-19 have had the Flu!! Also, let's switch to elbow bumps instead of handshakes to prevent spread. We do not need to sit next to each other in the meeting's chairs- Think you are in grade school and the person next to you has the cooties.

Please do not come to the meetings if you are sick with a cold or flu like symptoms.

Below is an advertisement From Swanson for supplements that help with respiratory breathing to counter the Virus. I am presently taking 6 of them for PCa as follows:

Astragalus, Quercetin, Bromelain, Feverfew, Oregano, and Coleus Forskohlii

To Read the Article - Click on the Link:

Link: Swanson
or Go To
https://www.swansonvitamins.com/blog/lindsey/herbs-for-respiratory-health

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Us Too Warriors,

At our Feb 2019 Meeting we had an Informative Program on ED from
"Peak Performance For Men".
This is A New, Proven and Successful Treatment for Erectile Dysfunction.

Focused Linear Compression Therapy (FLCT) protocol is scientifically proven to increase blood flow to the penis and optimize erections, sensitivity, and sexual performance. FLCT is a series of short comfortable treatments to the penis using focused linear compression sound waves that create long lasting results for erectile dysfunction and Peyronie's Disease by increasing blood flow and nerve tissue. The sound waves repair aged blood vessels, stimulate growth of new blood vessels and remove decades of micro-plaque. This procedure opens the blood vessels in the penis which is essential for a firm, rigid erection which also stimulates the nerve endings to greatly enhance sensitivity. This procedure is non-invasive, completely pain free with no side effects, no surgery, no use of drugs and no downtime. This breakthrough revolutionary technology is the only viable option for men with erectile dysfunction or men looking for better sexual performance with long-lasting results and no harmful side effects whatsoever.

Click on Our Links

Link: Freq Ask Questions

Link: Website
or Go To

Freq Ask Questions - http://rvaprostatecancersupport.org/PDF/Peak Performance001.pdf
Website - https://www.peakperformanceformen.org/


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Us Too Warriors,

Please find below more Clinical trial information on the effectiveness
of SBRT treatments for PCa. This is a follow up on the information from September's
meeting by Dr. Cuttino.

All the Best,
Peter

Per the Requests for the Power Point Presentation
"The September 20th meeting"

Dr. Lauri Cuttino, VCUHS Assoc. Prof. of Radiation Oncology at VCUHS and the Medical Director of Radiation Oncology at the Sarah Cannon Cancer Center at Henrico Doctors' Hospital, who discussed Stereotactic Ablative Radiotherapy for Prostate Cancer and gave a Power Point Presentation: Treatment of Primary and Limited Metastases.

To Read the Power Point Presentation in PDF format
Click on Our Link

Link: PDF
or Go To
http://rvaprostatecancersupport.org/PDF/Prostate SABR no video 92318.pdf

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More Clinical trial information on the effectiveness of SBRT treatments

To Read the Clinical trial information
Click on Our Link

Link: SBRT
or Go To
http://rvaprostatecancersupport.org/PDF/SBRT Phase 2 Multicenter Trial of Heterogeneous.pdf

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RVa Us Too Warriors, If you are on social media,
You can spread awareness of PCa by adding the posts on the link below to your Social pages.

This is a long list of social media posts which you can use on your FACEBOOK pages for September which is Prostate Cancer Awareness month.

Just cut and paste onto your page! (ONE at a time)

If you do one every few days - this will really help to get the awareness out there!

Please let me know if you are going to participate. We can really make a huge impact here
if we all take a minute to post at least a few times this month.
Email - Terri Likowski TerriL@ustoo.org

Click on Our Link
Link: Post
or Go To
http://rvaprostatecancersupport.org/PDF/Social Posts for September 2018.pdf
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Hampton University Proton Therapy Institute
HUPTI - 40 Enterprise Parkway - Hampton, VA 23666 - Phone - 877.251.6838

Proton therapy is a cancer treatment option most commonly used for localized cancer, meaning it may treat cancer that has not spread to other parts of the body. Though popularly used for prostate and breast cancers, it has become a standard form of care for numerous cancer types. Many patients, both young and old, have utilized proton therapy as an effective cancer treatment option.

Click on Our Link to visit their Website

Link: HUPTI
or Go To
http://www.hamptonproton.org/

Click on Our Link to see their latest TV Spot

Link: TV Spot
or Go To
https://www.dropbox.com/s/1oep0ax9095hu6c/HUPTI%20TV%20Spot%20-%20Stuart%20Goodman.mov?dl=0
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Us Too International - Hot Sheet 2019

Our monthly newsletter, the Hot SHEET, highlights the latest in treatment strategies as well as emerging treatments. The Hot SHEET is distributed free at chapter support group meetings, and is available in PDF on the Us TOO web site.

This is also a request for financial support to Us Too International Prostate Cancer Support.
Website of 2019 "Us Too Hotsheet News Letter"

To Read The Hot Sheet - Click on Our Link
Hot Sheet
or go to:
https://www.ustoo.org/Read-the-HotSheet-Newsletter
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We are pleased to announce the first Us TOO support group call
for the women behind the men affected by prostate cancer.

Because prostate cancer is a couple's disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her will be a regular call series which will focus on women and offer peer-to-peer support to address these concerns.

A Forum for Her is a regular call series (and invite-only Facebook group) which focuses on women and offers important peer-to-peer support. So far, the calls have been going great and will continue to expand.

As group membership grows and we become more comfortable with each other, we will be looking for volunteers to lead smaller group calls. If you would like to volunteer to help lead a small group call, please email me at terril@ustoo.org or call 877-978-7866.

(Your involvement would not require too much time or effort beyond the typical call length of about an hour. We would only be looking for you to lead calls, not come up with information, materials, or topics.)

In order to address very specific experiences, these calls are open only to wives and female partners of men affected by prostate cancer.

Please note that space is limited - Contact me at terril@ustoo.org or 877-978-7866 to reserve your spot and to get the call-in information!
Terri Likowski - Program Director/Support Group Services
Us TOO International - Prostate Cancer Education and Support Network
2720 S. River Road, Suite 112 - Des Plaines, IL 60018
877-978-7866 - terril@ustoo.org
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15th Annual Chicago
S.E.A. Blue Prostate Cancer Walk/Run
(Sept 15, 2019)

In the past our own Jerry Dean has participated in this event.

A personal update first. The good news is that this year marks 20 years that I have survived this relentless disease of prostate cancer. Last summer I underwent Cyberknife treatment. My PSA dropped with each subsequent measurement for several months until June of this year when it spiked again. And then after confirming it was not a lab measurement anomaly we began the process of trying to find out where it is in my body. My doctor in New York is part of a cutting edge clinical trial for imaging so we remain optimistic that we will be able to locate and treat it somehow, some way.

But lying between the realization that the fight is back on and the place of becoming truly optimistic about what comes next is a rickety bridge back into the wilderness experience of vulnerability and disappointment that we have been forced to visit many times before. I have been more emotional than usual this summer.

Whether they are tears of sadness or tears of joy is not always clear to me. There is so much to be joyful about. I have a new lens where a cataract once was. I have a new right knee and a new granddaughter. And I have and a published book (Lost But Not Forgotten) So the year that Cyberknife treatment bought me has been very fulfilling. And the future holds much promise for opportunities to live love and help impact the lives of others who are being thrust into the wilderness experiences of life.

One of the most rewarding things I do is volunteer with Us Too International. This organization sponsors over 200 support groups around the world. When I hear the stories about how men and their loved ones are being educated and given hope by those of us who have the lived experience with this disease it thrills my heart.

I know it’s not hard for most of you reading this to imagine what a relief it is to find someone in the wilderness who says to you. “Follow me I know how to get you through this experience of vulnerability and fear.” Because if we live long enough we all learn that the wilderness experiences of life are much closer than we think and we can be thrust into these disturbing places in a heartbeat.

So whatever our trial or tragedy we need wilderness walkers in our life. People who show up unexpectedly to point the way and say to us with confidence “If I can find my way through a mess like this then you can too.”

That is the essence of Us Too and why I am asking you to support me in September for the Sea Blue Walk in Chicago. I will not be walking this year due to the need to recuperate from knee surgery and a detached retina but I ask you to contribute nonetheless.

Thank you in advance for any contribution you are able to make.

If you wish to go, donate directly or register:

(Go To) www.seabluechicago.org (enter code POSTCARD2 for a $10.00 Discount)
or use the link - S.E.A. Blue Prostate Cancer Walk/Run

Click here to go to Jerry's fundraising page:
Jerry Deans
or Go To
https://ustoo.rallybound.org/sea-blue-2019/JerryDeans
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The US Too "Hot Sheet"
The Hot SHEET highlights the latest in treatment strategies.

The monthly newsletter, the Hot Sheet, highlights the latest in treatment strategies as well as emerging treatments. The Hot SHEET is distributed free at chapter support group meetings, and is available in PDF on the Us TOO web site.

To Read The Hot Sheet - Click on Our Link
Hot Sheet
or go to:
http://www.ustoo.org/Read-the-HotSheet-Newsletter
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Prostate Cancer Drugs

On this webpage you will find information and links for all available prostate cancer drugs, including:
androgen deprivation, chemotherapy, hormone therapy, immunotherapy and palliatives for advanced
prostate cancer. The drugs can take many forms including oral, intravenous, injection, and implant.
We have done our best to compile the latest information, but be sure to consult with your doctor before
entering into any drug program. If you see anything missing or information in need of updating
please email - ustoo@ustoo.org.

To Read and print this Handout - Click on Our Link

Drugs

or go to
http://www.ustoo.org/Prostate-Cancer-Drugs
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Life Extension Magazine

How to Reverse Markers of Prostate Cancer.

Despite prostate cancer being the second leading cause of cancer death in men, a raging debate has ensued as
to whether men should have annual PSA blood tests. The scales are tilting in favor of Life Extension®’s
multi-decade campaign to educate men about the importance of regular PSA screening. Not only are there proven
ways to reverse rising PSA levels, but breakthrough treatments can enable safer diagnosis and curative treatment
without the side effects associated with conventional surgery and radiation.

To Read The Articles - Click on Our Link

Life Extension Magazine

or go to:

http://www.lifeextension.com/Magazine/2016/6

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